Hello everyone, life just doesnt get easier. We returned from a much needed trip to the states, and that was nice etc, but Eicca isnt eating.He didnt eat well the whole trip, but learned how to walk, which is great. The passed few days now have been extremely trying, and I am looking longinly forward [...]
Archive for the ‘Uncategorized’ Category
It’s my 32nd bday and all I want is my son to eat..
Posted in Uncategorized on July 17, 2009 | 3 Comments »
12th of August
Posted in Uncategorized on May 18, 2009 | Leave a Comment »
So the date is set.. we have regretted this decision not to put the tube as he has not eaten in 4 days,. Not a bite, not a sip of anything. I have started to syringe juice and milk into his mouth.
Honestly we have had the anti.depressants thrown around, but when things are okay, [...]
He gained a tiny bit of weight, so no tube.. FOR NOW!::
Posted in Uncategorized on May 15, 2009 | 2 Comments »
But it is fucking coming. I am at this nearly 16 months.. all day every day, and i am so tired. I can’t get him to eat OR DRINK a thing all day.. i try to let him play with food, i try to be the best mom i can be, but i am so [...]
Deceion made about the feeding tube..
Posted in Uncategorized, tagged tube update on May 1, 2009 | 4 Comments »
So, we have a date set. On May the 18th my son, who we hoped, dreamed and prayed for will be getting his stomach feeding tube, or g.tube as they say.
After months of struggling and with him actually loosing weight the last few times at the doctors we have INSISTED it is just time.
The [...]
He has officially lost more weight!
Posted in Uncategorized on April 3, 2009 | 1 Comment »
So.. eicca has lost weight We checked today before we leave for Boston and he is down to 9kg. It’s sad and horrible to think that when we get back in 3 weeks he could really need that tube, but we are happy it is there for us to keep him healthy. THank [...]
Don’t love my baby right now..
Posted in Uncategorized on February 25, 2009 | 1 Comment »
Yep, the worst mommy on earth.. just got him all in his winter suit, and stuck a few spoons of fruit in him, ready to go then he pukes everywhere.. where i used to have compassion and feel sad for him, i am not just angry and find myself yelling at him. At a 13 [...]
home and none the wiser..
Posted in Uncategorized on February 10, 2009 | 1 Comment »
after being there 3 weeks, we have been home since friday and it’s just as bad, if not worse than it was there. We just cant get him to open his mouth at all. In a way i am in some peaceful place, because we will be monitored, but in another way, i am [...]
week 3—
Posted in Uncategorized on February 2, 2009 | 1 Comment »
This week started ok.. he ate some pudding over the weekend, but today was another big meeting with the drs, and they are just fucking thrilled with his progress. I dont get it.. maybe i am looking through a dark tunnel for so long i cant see the light, but i dont see a small [...]
the future looks bleek :-(
Posted in Uncategorized on January 30, 2009 | Leave a Comment »
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bawled like a baby
Posted in Uncategorized on January 27, 2009 | 1 Comment »
No not just every day.. which has been happening lately, but on eicca’s first bday. We had many many people over.. neighbors, friends, lovers (ha ha) etc.. and all was fine.. eicca played much and loved the attention and gifts. then the cake cutting time came.. my friend suggested putting him in the [...]
