..
journal of progress..
.. Thisis more for us than you guys, but i have no place to save it. today isday one, and i dont want to loose track of the feeding progress.. ifthere is some.. sigh!
weight 9.715 kg
Mon: morning
didnt eat anything from a spoon
few bites of bread
put hands in food
some tutteli from a cup
14:00 snack
refused yogurt from a spoon
few bites of a cookie
tutteli from a cup
held spoon in his hand and put in mouth without food
17:00 dinner
few bites of bread
1 spoon of soup fed himself
sips of milk
taste of ham
20:00- not a bit of anything
no milk drinking
some water
lots of crying
followed by 2 cups of water and bath..
hope tomorrow is better
day 2
bad sleep, screaming all night, so thirsty and hungry drank water
up at 6:45, medicine at 7
Breakfast:
250ml of tutteli- barfed twice, not all ,but some
took one spoon of puree
Lunch: Played with food
drank 100ml tutteli
100ml mustikka keitto
didnt eat anything
Dinner: seemed interested when we were eating pudding
nurse tried to feed him, he refused all foods, cried and was taken out of chair
i heard him crying, she reluctantly returned him to the chair.
He ate my pudding and then took many spoons of mango and meat soup. Grabbed many pieces of bread off his offered plate and ate some and drank some milk.
He even took a few spoons from the nurse when offered, then stopped and seemed happy.
Ended the meal with 2 pieces of white chocolate.
22:00 100ml of milk
day 3:
morning 2 spoons from the nurse
played with the spoon
some milk
lunch: couple of bites of a chip,
some milk
some strawbery soup
lunch:
half a cookie
some sips of yogurt
some milk
dinner: few sips
nite snack.
ate raspberry-oatmeal porridge him self, and some fruit puree
drank 100ml
23:00 snack
drank 100 ml milk-velli
day 4:
breakfast at 11:00 ( refused everything at 10)
drank 100ml
took black currant soup by spoon about 50ml
tasted a bit of bread
dinner: 5 hrs later
70-80 spoonfulls of puree ( mango yogurt, meat and potatoes )
some bites of cheese
some milk
some fruit soup
AMAZING!
evening snack:
20 spoons of porridge
some sips of soup
bad sleep at night
day 5
lunch: flat our fucking refusal of anything
dinner: few bites of pear
few sips of milk
after dinner snack:
few bites of bread, fed himself
some milk
shit day!
drs are all VERY pleased at how well it’s going and say that it is far exceeding their expectations. We have talked to the psychologist twice, she is nice, but the biggest obstacle is having marco here, when he is so dearly needed at work.
My days are boring, and eicca relishes in all the extra attention from me and the nurses, which is good, but we really dont see any real progress. Granted it’s just been a week.. 5 days, but still.. the drs said if he took a spoon himself on day 5 they would be thrilled.. so we are lucky in a way that he started at day 2, but.. but but.. it’s not enough. He simply cant live on 2-10 spoons a day of food, no matter what anyone says!
At least one more week here,but frankly i am not leaving until he is eating a bit closer to what he should per day!
thanks for listening. our little guy is 1 year on sunday! Happy freaking bday.. at least he can come home for the afternoon!!
